The Spanish Association for Lysosomal Acid Lipase Deficiency (AELALD) is pleased to announce the signing of a collaboration agreement with the Fundación Española para el Estudio y Terapéutica de la Enfermedad de Gaucher y Otras Lisosomales (FEETEG), led by Dra. Pilar Giraldo.

Under this agreement, AELALD will partially fund a research project led by Dr. Giraldo's team. This study aims to provide a greater understanding of Lysosomal Acid Lipase Deficiency, an ultra-rare disease that remains largely unknown and underdiagnosed.

Lysosomal acid lipase deficiency is a genetic disease that severely affects those who suffer from it, but there is still much to learn about its causes and symptoms. Through this collaboration, AELALD and FEETEG seek to fill this knowledge gap and improve medical care for those affected by this devastating disease.

"We are excited to partner with Dr. Giraldo's team on this important research project," said Eduardo López, president of AELALD. "We hope that this study sheds new light on Lysosomal Acid Lipase Deficiency and contributes significantly to improving the quality of life of those living with this disease."

This study is expected to have a significant impact on the medical and scientific community, as well as patients and their families. As the research progresses, AELALD is committed to sharing the conclusions and findings obtained to benefit the entire community affected by Lysosomal Acid Lipase Deficiency.

About FEETEG (feeteg.org)
The Spanish Foundation for the Study and Therapeutics of Gaucher and Other Lysosomal Diseases (FEETEG) is an organization dedicated to supporting patients and family members affected by lysosomal diseases in Spain. Its mission is to promote research, improve access to treatments, and provide educational and support resources. Through collaboration with healthcare professionals, researchers and other organizations, FEETEG works to improve the quality of life of people affected by these rare diseases and foster greater awareness and understanding in society.

About AELALD (aelald.org)
The Spanish Association for Lysosomal Acid Lipase Deficiency (AELALD) is a non-profit organization dedicated to supporting patients affected by Lysosomal Acid Lipase Deficiency and their families. Through raising awareness, education and promoting research, AELALD works to improve the quality of life of those living with this ultra-rare disease.